Travelers to Unimaginable Lands

Caring for someone with dementia can be overwhelming. These compassionate, beautifully observed case studies meld science and storytelling to illuminate both sides of this complicated, symbiotic relationship. After getting her master's in clinical psychology, Dasha Kiper took a leave of absence from school and began to look after a Holocaust survivor with middle-stage Alzheimer's. For a year, she lived with the emotional strain of caregiving, learning at firsthand how disorienting and painful it can be to look after a person whose condition blatantly disregards the rules of time, order, and continuity. Based on the decade she has since spent as a counselor for caregivers of dementia patients, Kiper offers an entirely new approach to understanding the relationship between patients and those tending to them. In these poignant but unsentimental stories of parents and children, husbands and wives, Kiper dispels the myth of the perfect caregiver. Relying on a wide breadth of cognitive and neurological research and borrowing from philosophy and literature, Kiper explores the existential dilemmas created by this disease: a man believes his wife is an impostor; a woman's imaginary friendships with famous authors drive a wedge between her and her devoted husband; another woman's childhood trauma emerges to torment her son; a man's sudden, intense Catholic piety provokes his wife. As painful as these conflicts are for caregivers, resolving them has its own cost. In order to find peace, caregivers try to walk an impossibly fine line between acknowledging what the disease has taken from someone they love and recognizing what it has left. Anyone taking care of a family member with dementia knows how difficult it can be, but Kiper explains why it is difficult, why the caregiver's mind often mirrors the irrationality, denial, and rigidity that typically characterize the patient's behavior. By focusing on the healthy brain's proclivities, Travelers to Unimaginable Lands reveals the neurological obstacles to caregiving, illuminating not only the terrible pressure the disease exerts on our closest relationships, but offering solace and perspective as well.