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Beskrivelse
Depart on a Rare Journey series, with me, Prof. Hong, as I explore a very rare disease known as AADC Deficiency. Together, we will take a scientific quest to learn more about this rare disease and how it affects the life of a young girl, Rylae-Ann, and her family. This rare disease begins as an unexpected mystery that baffles doctors, leaving Rylae-Ann's parents to solve it. But after solving the puzzle, the family is left with even more questions. However, young Rylae-Ann and her parents never give up. The journey of life is filled with ups and downs, but the difficult roads will lead us to beautiful destinations. In addition to the wealth of knowledge you will gain from this adventure together, the purchase of this book goes directly to helping families like the one featured in this story. This book will inspire you to go beyond what you think is possible. The world needs more researchers, educators, and scientists. More inquisitive people like you who ask questions and want to find answers.The Rare Journey SeriesA series of educational books that features a true story of a rare disease. These books will inspire you to go beyond what you think is possible. The world needs more researchers, educators, and scientists. More inquisitive people like you who ask questions and want to find answers. The adventures we explore are based on true stories and will deliver a wealth of knowledge to you. In addition, purchasing a book from this series goes directly to helping families and children in the rare disease community.
