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This book helps you understand you are not crazy and you are not alone. Many of our children, and adults, have non-standard conditions. They are truly unique and special. Their conditions require a special route to get them the help they need. They require doctors who will listen and specialized treatment to control their condition.
I have been there. I suffered for seven years, including hospital visits and loads of doctor appointments. I was continually turned away with no answers. I followed a clear path and utilized tools that I will share with you. My path and tools got me a diagnosis and treatment. I started over again when my then 8-month old son showed signs of a periodic fever condition, PFAPA. I followed the same steps, and used the same tools, to find him a diagnosis and help. I will teach you how to do the same.
This book will empower you and lead you on a path to get a diagnosis. We will provide you with tools to get an answer and help you learn to manage your child's healthcare along the way. You will learn to do exactly what we did - get on a path to an answer to the "unknown." You will get the help you, or your child, needs.
What to expect:
- My family's successes and struggles in searching for medical answers.
- A clear defined path, with steps to get a diagnosis and find an answer.
- Tools to help keep you organized and on a path to get a diagnosis.
- Tools, and steps, to help you maintain your child's health history and records.
- Tools to help you track continued care and treatment of your child's condition.
- Information, research, and resources to assist you. The information is a reference to understand health and your child's medical condition. It can also help you prepare for doctor visits.