Aniridia and WAGR Syndrome

- A Guide for Patients and Their Families

af


Aniridia and WAGR Syndrome
  • Leveringstid 2-3 uger
  • Forventet levering 10-12-2019
Format:
Bog, hardback
Udgivelsesdato:
07-04-2010
Sprog:
Engelsk
  • Beskrivelse
  • Yderligere info
  • Anmeldelser

Our hope is to enlighten and encourage those affected by aniridia and WAGR Syndrome by providing patient support and medical information. There is information to inform parents, teachers, doctors, employers, and the public about aniridia and what it is like to live with it. Several renowned doctors contribute medical chapters. Personal experiences from individuals with aniridia and parents with children with aniridia provide encouragement. Contact information forAniridia Foundation International (AFI) is included. When a child is born without a complete iris, it is usually a symptom of a broader condition. Known as aniridia, this condition can also be a sign other parts of the eye are underdeveloped as well. Moreover, recent research shows that the gene involved can also affect the kidneys, pancreas and forebrain, so aniridia can coincide with a range of symptoms known as WAGR syndrome. Until recently, however, there was very little information available on aniridia and WAGR Syndrome. Even now, not allof the available information is current or correct, so that when a child is diagnosed with aniridia, the parents often find or are given information that is confusing and even frightening. We created this book to help those families see that they are not alone, and there are a lot of answers and a great deal of hope. It contains information about aniridia and WAGR Syndrome for parents, other family members, friends, teachers, doctors, and employers. We have been very fortunate to have several renowned doctors contribute current and comprehensive medical information that will help to provide concrete answers to basic questions and demystify these conditions. The book has manypersonal stories from individuals and parents that will help to give a more complete picture of what it is like to live with aniridia and WAGR Syndrome and provide encouragement and comfort. It also contains information about where to go for more answers and support, including the Aniridia FoundationInternational (AFI), http://www.aniridia.net, a non-profit organization created by one of the authors, Jill Nerby. We hope that you will read this book and join us in creating a better future for those with aniridia and WAGR Syndrome.

Vis mereVis mindre

Udgivelsesdato:
07-04-2010
ISBN13:
9780195389302
Vægt:
456 g
Dybde:
18 mm
Bredde:
161 mm
Højde:
241 mm
Format:
Hardback

Vis mereVis mindre

Vis mereVis mindre

Fandt du ikke hvad du søgte?

Hvis denne bog ikke er noget for dig, kan du benytte kategorierne nedenfor til at finde andre titler. Klik på en kategori for at se lignende bøger.

Velkommen til Saxo - din danske boghandel!

Hos os kan du handle som Gæst, Saxo-bruger eller Saxo Premium-medlem. Du bestemmer selv, og vores kundeservice sidder altid klar med hjælp.

Om medlemspriser hos Saxo

Hvis du køber til medlemspris, bliver du automatisk medlem og får del i de mange fede fordele. De første 30 dage er gratis for nye brugere, og derefter koster det kun 99,-/md. Medlemskabet fornyes automatisk, og du kan altid opsige det. Læs mere om fordelene ved Saxo Premium her.